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Wednesday, July 6, 2011

Assorted Idiots -- Part III

 
Part III of the Idiot 'ilogies.

So, you've survived the long road trip without meal-like sustenance... Merely nibbling on the vegetarian snacks you've packed in the event of emergency.  Okay... "nibbling" was genteel... You've scarfed down nuts as though your life depended on it... Your body is now craving piping hot flesh, and at least one leafy, greeny vegetable.  Your mood won't be warm and rosy until you get it.

The glass can not be full unless a hot meal comes with it.

Oh yeah... we're talking one step away from going primitive.

You check into a charming, little hotel... Quite nicely appointed and off the beaten track -- perfect for your weekend getaway.  However, your allergen-meter goes on alert when you spy horses gently grazing on the property.  Horse dander and you have never been on friendly terms -- in fact, the last time you went for a horseback ride, you dismounted covered in hives from the belly-button down.  Not a deal-breaker, but definitely a reason not to go for long walks on this particular property.  Once the body goes into allergen-response mode, it seems as though it reacts more sensitively to the allergens it comes into contact with subsequently.

You check in and then go up to your double room.  It's a rustic hotel, and it looks as though it doesn't have A/C.  You immediately claim the bed near the window... purely because "She who is near the window controls its opening and closing," in theory.  If you can keep it closed, you'll hopefully minimize your allergen response...  Your BFF is happy to claim the other bed, and you both plop down for a second -- after the long ride, it feels good to stretch out on a mattress.  

BFF starts reading aloud from one of the brochures she picked up at the desk -- there's an attraction nearby -- you could conceivably check it out before dinner.  "After dinner," you correct her.  You are stAAAAAAARVing and nothing will keep you away from a succulent half of a cornish hen, roasted 'til crispy- brown with an herbal rub and surrounded by new potatoes, broiled in a buttery, rosemary glaze... Or a horseradish and sesame-crusted tuna steak, lightly grilled so that the center is still raw... With julienned ginger, zucchini and summer squash...  Or maybe even chicken korma, with chunks of dried fruits and whole cashews, with an extra green chilly for good measure -- and, of course, how can it be ingested without a delicious tadhka daal, basmati and -- oh, let's go all out -- a kerala paratha!  And wash it all down with a glass of red Sula, and a generous helping of 3 gulab jamuns....  Ohhh... Your heart races just thinking about an imminent feast.

"Why?"  BFF asks.  After all, she just ate a couple of hours ago.  

After a bit of clever coaxing, you're on your way to a restaurant that was highly recommended by the reception clerk.  When you get there, you find it's slightly more than a pub -- which is fine -- you just need one good, "stick to the ribs" kind of meal, and pub fare will do the job just as well as haute cuisine.

You alert the hostess that you have deadly food allergies, and ask if they can accommodate you.  "Sure!" she says, without much hesitation.  

Okay, perhaps that's a good sign....

You're seated at a table that offers a lovely view of the gardens -- you're both quite pleased with the rustic charm of the place. You open the menu and discuss the selections, as you begin to narrow your choices.  A bit of girl-talk and giggling ease into the mix... your stomach's growling, but you're still able to enjoy the perks of being a girl.  During the conversation, you take out a flash card and place it on the table - readying for the most important conversation you will have all day.  It's as though you're operating on two levels of consciousness -- on the one, you MUST eat -- and, on the other, it's nice having a couple of days away with your BFF.  Not long afterwards, the waiter comes to take your drink order and announce today's specials.  You then make your announcement. 

Virtually the same words every time... but you tailor them to the listener -- go into more depth here and there, as you gauge whether or not you have connected with the person's comprehension... all you need is for him to understand, then he can take your flash card and be your worthy messenger.

You connect, and the waiter says he will speak with the chef.  In his absence, conversation turns to another girlfriend who just gave birth to twins.  You both try to wrap your heads around how she is handling two sets of hungry mouths and poopy bottoms when the waiter returns.  He says that he'll take your order and then consult with the chef.  You both place your orders.  Yours is strategically chosen to demand the least customization of all the selections -- baked salmon and garlic-sauteed spinach... healthy and simple.  You specify that you don't need any garnish, and that they should just place the fish and spinach on the plate without anything else.  The "no garnish" concept was a bit difficult -- garnishing a plate is normally a thoughtless endeavor -- but garnish awareness is essential for a successful dining experience, so... the waiter disappears into the kitchen with your orders.

BFF asks why you have to take so much time to explain your requirements to the waiter... "Every time!  I mean, gosh... Doesn't it get embarrassing for you?"  Somehow, it comes through that the embarrassment BFF refers to is more hers than yours.  Not quite sympathetic.

Your friend nibbles on the bread, but you cannot -- you have no idea whether the ingredients are safe, so you abstain... that leaves more room for the food that you're paying for anyway... oh yesss... every, delectable morsel of salmon....

The waiter comes back with a few questions about the foods on your flash card.  You answer, in hopes that this will help them determine how they will prepare your dish.  The aroma of the dishes on the surrounding tables makes your stomach growl even louder.  "Mmmm... the food here smells great!"  BFF says, looking around at the other tables.  You look around also, thinking, "Finally!  My one, square meal of the day."

The waiter comes back, bringing your flash card.  "We're sorry, but the chef said that the oils we use all contain sunflower, and we don't use any other type of cooking oil."

"Butter?" you offer.

"We use a margarine spread that contains sunflower.  So we can't make the salmon and spinach for you.  We can steam some carrots and broccoli for you, though.  We would steam them and we know you would be fine."

You look at BFF, who does a reverse-nod and says, "That sounds good to me.  Will it be ready with my sliders?  We're hungry!"  She bats her lashes.

The waiter responds, "Yes."  He turns to you, "Are you okay with the broccoli and carrots?"  You're disappointed that BFF still wants to eat here... despite her sudden hunger and lack of empathy, you give in, since you need to eat something other than fruit and nuts sooner rather than later.  He disappears into the kitchen.

"Why couldn't we go some place else?  I've just eaten fruits and nuts today -- I'm going to grow feathers!"  He had barely disappeared, when this sentiment burst from your lips. 
Okay, that lacked subtlety.

"What do you mean?  You're going to have vegetables -- that's better than nuts, right?"  BFF says this without a trace of deeper understanding.

Your mouth literally drops open... which is good... it's best that you check your initial response for something more tactful.  "I'm not a vegetarian, Bea.  Organic - yes.  Vegetarian - no. They're not the same.  I need one square meal a day, at minimum... and I really am craving fish or chicken."

"Oh... I didn't know.  Can we just stay and then we can go somewhere else tomorrow?"  Just as these words are out of BFF's mouth, the waiter arrives with your food.  Her sliders make you salivate, despite the fact that you don't eat beef.  Your steamed carrots and broccoli look more boiled than steamed... and when you take your first bit, you realize that they did not use any seasoning -- not even salt.  Your eyes water.

You've known BFF since the year after your anaphylactic diagnosis more than a decade ago.  If she doesn't understand by now, she never will

Monday, July 4, 2011

Rebranding of Anaphylaxes Axis

Happy Independence Day!

"Anaphylaxes Axis" has been renamed "Anaphylaxis Axis".  This change will make it easier for  readers to find these pages from search engines.  Please feel free to follow by email or subscribe to a feed so as to keep up with the latest and greatest!



Friday, July 1, 2011

Assorted Idiots - Part II

Part II of the Idiot 'ilogies

We're still at the rest stop.  You're still eyeing the possible antagonists... The grilled sausage sandwich regards you with contempt... You can feel its disdain emanating from its greasy perch under the heat lamp.  The home fries menacingly dare you to chow down on their leathery texture.    The smell of grease and assorted mixed allergens assault your nostrils, as your stomach muscle tightens...  

It has not escaped your notice that your friend has been putting some physical distance between the two of you... She hasn't glanced your way over the past few minutes, and seems to be avoiding any kind of eye contact or acknowledgement of your connection.  She happily trades small talk with the food server, as your sweat glands go into activation...  

You finally determine that the safest choice on the menu has got to be the lone, buttermilk biscuit in the far left corner of the display... It's nested in an area that is seemingly separated from the other foods, the nearest of which are not known allergens... As a matter of fact, there's a full three and a half feet in between the biscuit and the nearest known offender.  Do you dare?  Your friend happily pays for her purchase, and motions that she is going to take a table for the two of you.  She plays "oblivious to your anxiety" almost convincingly....

Ok... You've made the decision -- why are you still uneasy?

The little voice inside your head (note: "the", not "a") says to ask a specific question.  So, you launch into "ingratiate yourself then scare the living bejeezus out of 'em"-mode, greeting the food server energetically, asking how s/he is doing today prior to working "I have a deadly food allergy and I'm wondering whether you might be able to safely accommodate me here today...?" into the conversation.   As expected, the server's eyes pop open, and s/he asks you to repeat what you just said.  You hand over your flash card, and wait for the server to read through it.  You field her/his questions, as s/he rubs her/his chin in contemplation.  The server tells you that s/he can make you plain eggs to go with that buttermilk biscuit.  And now... The question.  

"What type of cooking oil do you use?"

"Vegetable oil.". The server answers without any thought to the fact that this ingredient is on your flash card.  Bolded.

"Vegetable oils are usually a mixture of two or more oils.  Could you please read the ingredients and tell me what they are?"  This is what your intuition had perceived via the ethers... Rightfully, you press.

The server ambles over to the grill, and takes the oil spray can in hand, looking for the ingredients label.  "Hmmm... It says corn and sunflower.  Hey, that's on your list."

You're hungry.  "Was it used to prepare the biscuit?"

"I'm not sure.  We don't make them here... I wonder if we have the ingredients for the biscuit somewhere..."

You look at the display again, and notice a gleaming layer of something resembling oil or grease along the bottom of the display.  You realize that you're probably going to be really hungry for some time to come... Unless you pop open one of your pistachio snack bags.  And you've been snacking,  handful at a time for the past couple of hours... You were really hoping for something other than this birdfood....  In your haze, you hear the server pipe up that they do "throw" the biscuits on the grill for a quick "browning" of their tops.  You thank her/him for her/ his efforts politely, and then turn to find your friend... Who is inhaling massive quantities of untouchable food.  Your stomach growls audibly, as all you can do is watch her eat.

What a garish sight.

Wednesday, June 29, 2011

Oh Yeah... Assorted Idiots... Part I

Part I of the Idiot 'ilogies.

Assorted Idiots...

Such a variety -- where do I begin?

How's about here...

Imagine yourself taking a lovely roadtrip with a travel buddy... Somewhat spur of the moment -- a decision made one day in advance -- but why not?!  There's something about spontaneity that is invigorating, daring and downright exciting....

Your anaphylactic nemesis is of the food variety, so you pack a few things that you know you can eat safely... A couple of oranges, peanut butter, honey, a loaf of whole wheat bread, a can of salted peanuts, unsalted pistachios, a couple of apples, and bottled water.  You are hoping to find a few lovely restaurants that can accommodate you, but are carrying these things as snack food, as well as possible short term meal alternatives in the event that the local establishments are unfit.

You're going to a wonderfully scenic destination, but the drive is long.  Along the way, the two of you decide to stop to stretch your legs, use the restrooms, and possibly grab some lunch.  The first three are working beautifully... However, when it comes to the meal, you realize that the rest stop only has fast food of the "it's gonna give you Delhi Belly" variety... Which sets off alarms for you -- places like this are never able to accommodate you, even on Opening Day.

You subtlely vocalize your concerns to your friend... Expressing your hesitation and discomfort should be enough... However, your friend, usually the first to get subtlety, subtlely ignores your concern.  You study the situation to determine your probability... You survey the ingredients in the dishes... The garnishes used and how it is laid out in the display... The way the food is being prepared and cooked... How the servers handle the food...

Your friend delightedly states that she can't tell whether to get #3 or #7, as you stare down a particularly menacing-looking croissant sandwich.  You express your concern in less ambiguous terms -- "I don't feel comfortable eating here -- I don't think they can prepare something for me without contamination...".  Your friend gleefully places an order for a #7... At which point, you realize your friend is truly a #2....

Wednesday, June 15, 2011

Perks, Jerks and Other Assorted Idiots

Perks.

Some perks are obvious.  Others take the development of a new paradigm.  Let's work on that new paradigm together.

There are numerous perks to the anaphylactic lifestyle.  True, it is a completely unplanned reality... One that you never could have anticipated in even your most bizarre dreams.  Yes, it takes a bit more attention and effort to circumnavigate those things that could send you onto a gurney or into a body bag equally as quickly... And yes, it stinks that you won't be able to eat that wonderful dish that you clearly must have really liked... Or suit up in that latex outfit... And anaphylaxis does give the word "carefree" new meaning for you.... But, let's face it -- what doesn't kill you (literally, in this case), makes you wiser, stronger and a strategic mastermind.

Wisdom.  What is wisdom?

   * accumulated knowledge or erudition or enlightenment

   * the trait of utilizing knowledge and experience with common sense and insight

Insight.  Insight gives us the perk.  One such perk is the fact that jerks and other assorted idiots don't take long to become uncloaked.  "Nue comme un ver." Stark bloody naked.

A jerk will insist that the two of you (or the group you're with) eat in an establishment that might not provide a safe dining experience for you.  If the person does not defer to you in choosing a place to dine, then this person does not value your life.  At first glance, this sounds like a power play -- but it's not.  It's purely an exercise in humanity.  A friend living the non-anaphylactic lifestyle can eat whatever they want, whenever they want, wherever and with whomever they want.  The number of times they go out with you are a fraction of those times.  When they are with you, allowing you to make the ultimate call does not diminish that person's overall enjoyment of life.  If seeing you on a drip in the ER is just as entertaining an option as going to a Broadway show, then maybe it's time to re-think this connection.  After all, you choose your friends -- you are not the victim of their choices.

Friday, June 3, 2011

Always Flash

Use Flash.

Work it.  When you hand the card to the waiter/waitress, make sure you explain that, if your food comes into contact with any of the items on the list, and you eat it, you will die.  Some form of the word “death” usually catches a server’s attention – you can physically see them perk up, as they listen more intently.  If a server does not seem to understand the gravity of the situation, leave the restaurant.  Earlier on, I paid the price for not having properly gauged a waiter’s lack of concern.

The waiter remembered me from a previous visit, during which, after giving him specific verbal direction (I hadn’t yet devised the flash card strategy), he served my dish with a helping of lettuce on it.  I sent the dish back, explaining that I needed a new meal prepared and that I would need them to put it on a clean plate.  During my second visit, I can only guess that the chef had placed lettuce on my dish, and then removed it after the waiter noticed it.  Unwittingly, I ate dinner, and proceeded to experience part of my anaphylactic reaction on my way home.

Depending on the personalities of the establishment's staff, you might receive the attention of numerous members of the wait staff, management and/or the chef.  I consider this a good sign -- it means that they are giving your requirements due gravity.  They understand that your life hangs in the balance, and that they could be responsible for anything adverse that might occur.  These are the people you want feeding you.

You might also encounter restaurant managers who politely and nervously tell you that they would like you to leave the restaurant, because they are concerned that they will not be able to segregate the preparation of your food perfectly.  This usually follows numerous iterations of questions and answers, and trips to the kitchen.  Use your best judgment to determine whether or not to eat there.

Wednesday, June 1, 2011

Flash 'em!

Flash 'em!

Ok... Let's keep this G-rated.... 

Want to improve your odds of dining without adverse incident?  Hand the food service manager (e.g.  Restaurant manager, chef) a flash card listing your anaphylactic allergens.  A flash card can be as simple as words typed on a slip of paper, or as elaborate as a laminated card or sheet of paper listing your allergens.  You can buy them online, or make them on your own – making your own ensures that the information will be custom-tailored to your particular case.

Size matters.  Don't believe anyone who says otherwise... It must have large enough type/font so that the average person who is neither legally blind nor a perfect 20/20 can easily make out all of the words on the sheet.  If someone must squint or guess at the items listed on your flash card, then you are effectively engaging in a game of Russian Roulette.

The size of the card matters also.  The card should not be so small that it can easily be lost by your server or  chef -- but it should also be not so large that it is difficult for your waiter/waitress to carry with your order.  I find that 8.5 x 4" is a handy size -- and it doesn't get lost.  5" x 7" works as well.  At times, it will come back to you with oil and/or food stains... most cherished proof that the flash card made it into the hands of a chef.

Content.  Remember the 3 Cs:  Clear, Concise, Comprehensive.  Use simple, clear sentences to convey your requirements.  Assume that your reader could have Attention Deficit Disorder – get the reader’s attention while keeping your message short.  Finally, make sure that all of your allergens are listed – it must be comprehensive enough so as to leave no question in the reader’s mind.

The flash card is a tool that should be incorporated into your repertoire and used any time you are thinking of having food pass your lips.  Make sure your EpiPen is within easy reach at all times.

Sample Anaphylactic Allergy Flash Card: